SWAN UK (Syndromes without a name)
SWAN UK provides support and information to families of children and young people with undiagnosed genetic conditions.
The information on the website was correct on the date it was published. We make every effort to keep the information on our website correct and up to date, but South Tyneside Council cannot accept responsibility for any errors or omissions, or liability for any inconvenience, loss or damage, however arising, from the use of, or reliance of this information. You should check any information with the relevant service before acting or relying upon it.Disclaimer - South Tyneside Council does not run this service
Contents
Overview
SWAN UK provides 24 / 7 support and information to families of children and young people with undiagnosed genetic conditions (also known with syndromes without a name).
The team allows families to make contact with others who understand the challenges of raising a child with an undiagnosed genetic condition.
Support available
The service provide 24 / 7 access to online support forums, and run family events.
Who can access the service
Family of children or young people aged 0 to 25 who are affected by an undiagnosed genetic condition.
How to access the service
People can become members by filling in the online membership form.